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December 24, 2010


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Lissa Poincenot

I saw this blog because I'm interested in all things LHON-related and in helping others quickly find the information they need to deal with this rare disorder. My son was affected by LHON 2 years ago, and since then I've been trying to learn all I can - the best doctors, possible treatments, etc. - and to share that info with others affected. If you'd like to contact me at LHONpoince@aol.com, I'd be happy to share what I've learned.
Lissa Poincenot


(Tap)...(Tap).... Is this thing on ???? EVER?????????????

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